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home Publications Success Stories Alice's Story

Alice's Story

Photo courtesy Joni Kabana.Alice was pregnant with her 6th child when she had her fistula.

Her husband left her and remarried after 3 months. He would not permit her to see her surviving children and convinced friends and family not to help or take her in.

Alice suffered alone for 4 years, isolated, humiliated and constantly leaking. (Read about fistula)

Through the support of WFF and its partner, TERREWODE, Alice’s hope was restored. She received a successful fistula repair surgery. While in recovery, Alice took literacy and vocational classes and received physical therapy, counseling and advocacy training.

I hate to see a woman with fistula suffer like I did.


After returning home, Alice sought out other survivors and formed the Amorican Fistula Survivors Solidarity Group. The Group performs musical dramas in villages that raise fistula awareness and prevention. It wasn’t long before the Group invited men to join to educate and reach a wider audience.

Alice’s Group was a success. They broke the silence on issues like child marriage and teen pregnancy in their community. Their performances help men better understand fistula – that it is both treatable and preventable – and teach them how to support their wives. Community members began to do what they could to assist the group and ensure its success. Some donated food, money, and others provided transportation to and from shows.

The community was not alone in reaping the rewards of the Group. Alice and the other fistula survivors began to heal emotionally through performing and feel accepted in the community once again.

The work Alice is doing makes an impact beyond her own community. She has inspired local politicians and leaders to donate land to build a hospital in their community.

She has also been invited to Kampala, the Ugandan capital, to speak and has been asked to return with other fistula survivors. Alice’s Group has identified and referred 27 women for treatment to date.

It has changed my life and the lives of those in my family. I am a leader now; not only in my group, but also now a leader in my family.


2,000 women develop fistula in Uganda every year.

Photo courtesy Joni Kabana.